7 DAYS TIL HALOBRATION!!!!
Sorry for not posting yesterday. Didn't mean to get anyone in a panic, just a busy day I guess. Just remember, no news is good news.
So we are in hour 36 with the trach capped. Woo hoo. She should have no problem reaching the 48 hours needed. Not sure though when the trach will actually come out as it won't be on the schedule for tomorrow and they told us they wouldn't take it out on a Friday so guess we are looking at Monday at the earliest. Therapy has been going well. Yesterday they had Jace feeding herself(chocolate donut) with the help of this sling machine, but she did very well for not being able to move her head to help. Today she was balancing herself sitting forward in her chair. Again, a marvelous job. You can just see the determination in her eyes. She is really getting to manouver her chair quite well too.
Jayci's friends Jenessa and Becca were up visiting for the afternoon then our cousins Renae and little Devyn brought supper for us(BP's mmm). Thanks Renae, you are so good to us!
I guess Jace is a little too cooperative around here. Karen, her OT, says she is going to write 'It doesn't matter' on the top of Jayci's halo as anytime Karen asks her something or gives Jayci a choice, that is what Jayci says, "It doesn't matter".
Well, time to get ready for bed, have a snack, watch a little TV, or discuss our BIG plans for tomorrow(haha). Take care everyone!!!!!
Love Shawn, Starla & Jace
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We really enjoy reading the updates AND the comments.Glad to hear things are going so well. Keep it up, Jayci.
ReplyDeleteThe blog is the first thing we check every morning and the last thing we check at night.(and 243 times inbetween. lol lol )
We have you in our thoughts and prayers every day, Jayci.
We also keep Shawn, Starla, Cassie & Ty in our thoughts.
Keep up the good work everyone.
Luv y'all lots.
Uncle Jack and Aunt Jacki
ps -- Trevor wanted me to pass on his thoughts and prayers. He wishes you well.
Hey Jayc,,
ReplyDeleteSounds like you had an awesome day.. Ha ha sounds like they need to feed you a few more donuts to but some more weight back on to your bones. Lol, I will come up tomorrow afternoon for a lil visit.. See ya than.
Luv Cuz
Skylar
Fantastic news knew you could do it jay bird just have to put your mind to it and anything can happen. Grandpa will be really happy to hear that. I will bring 2 salads and self filling cupcakes this week end smaller ones and hamburger soup for who ever likes it.
ReplyDeletehave a great day and see you sat morning.
Love grandma xoxoxo
Sounds as if you are improving very well Jayci!! That is good news. Just keep that determination up, that is what i have learned!!
ReplyDelete-LB-